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Treatment and prognosis

Authoring team

  • children usually die within 2 years of the diagnosis
  • in up to 10% the child develops an acute leukaemia; in a further 10% there are other malignancies
  • androgens and steroids delay progression of the condition
  • bone marrow transplantation - there is a 70% survival at 5 years post-marrow transplant

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